Please read this to the end, no matter how unnecessary and unrelated to your present needs you may find it. It may just save your life one day. Tuck it away.
This is an earlier note on Melanoma Prayer Center. As we advocate for you to keep a check on your skin and moles and visit your dermatologist at least annually, there are things you need to look for in a dermatologist and even your primary care physician if that's who you take your skin issues to. As you read this, you'll learn what to look for in a dermatologist. It is also followed, at the end, by advice that a dermatologist posted on MPC in response to this.
On MPC this note is titled "Dear Dermatologists, We Need You!":
I know there are dermatologists and people in other medical fields
who visit MPC and that tells me a great deal about you. It tells me
that you are in the front of your field in understanding that you are
usually our first line of defense against melanoma; you are
knowledgeable of melanoma; and you take us, your patients with melanoma
seriously. It tells me that you care about connecting with us on a
deeper level outside office hours. I cannot thank you enough! But we
need more from you, please.
As with any field: medical,
religious, legal, technological, you name it, there are specialties.
Even within "specialties" there are "sub-specialties." Dermatology is
no different and because it's your field, you want to grow and get
better. There are dermatologists who are very knowledgeable and stay
up-to-date about melanoma, and there are dermatologists who aren't and
don't. Their interests are in other dermatological arenas. (You know
that because some of your patients have left them to come to you). And
that's natural and fine to have those other interests, up to a point,
and that's where we need your help desperately.
Many of
us are patients of dermatologists who really know very little about
melanoma. We need you to encourage your colleagues to learn something
about it and about the human nature of people concerned about it. This
is what we need from our dermatologists, and please, share this with
them:
We need you to make sure everyone in your office is
familiar with melanoma, even the person who answers your phone and
schedules appointments. Make sure they understand that when someone
calls saying they have a rapidly changing mole, freckle, or other place
and need to see you...make sure your staff knows that can be deadly
and to make an early appointment for that person even if it means
working them in. Tell them NOT to put that person off for months until
your next opening. I, personally, will thank you for that one!
We
need you to see us as people and take our concerns seriously. When we
come to you with a place on our body that we are concerned about and
ask you to remove it and have it sent to pathology, PLEASE do not tell
us "it's nothing." Do not tell us "we'll keep a check on it." Simply
remove it and have it pathed.
Know enough about melanoma to know that there is no special look to it and know enough to know that watching it may kill me.
Ask me about my family history with melanoma and know my own history with it!
Know
that unnecessary knots and anxieties are created in me when you do not
take my concerns seriously and send me away with the suspicious place I
came in with. If I trust my gut, why can't you?
We need
you to understand that it's OUR mass, mole, freckle, change, concern;
they will be OUR stitches and scars; it will be OUR recovery. Not yours.
And,
if you call it wrong, it will be OUR melanoma journey and possibly OUR
death. None of that will be yours. We don't ask for removal procedures
for the fun of it or because we want another set of stitches and
another scar.
We ask because we're afraid of what we see and feel and we don't want to die because of it.
We
also know that we may have many, many suspicious places removed and
come back "nothing," and we'll be relieved. And we'll be back the next
time there's another one. Please never get to the point where you start
telling us "They've all been nothing so far and this one looks like the
rest and is nothing, too." You may remove twenty "nothings" but that
twenty-first one may be the one that's "something."
If
melanoma is beyond your area of expertize, PLEASE refer us to a
dermatologist who knows about it. PLEASE! Don't put our lives in danger
because you can't swallow your pride.
And, when that
place does come back positive for melanoma, please refer us to a
melanoma specialist oncologist. Know the one(s) in our area, even it
requires a drive to get there. Let how far I'm willing to travel be MY
decision, not yours.
Again, doctors reading this from MPC,
you're already doing this, and more, and I thank you from the bottom
of my heart. Will you please advocate for us when you're with your
colleagues and at those conventions and CEU sessions?
Our
lives are just as much in your hands as they are oncologists if we
ever do get melanoma. We're trusting you and counting on you.
Please
don't let us down. One day, you may be one of us and you'll
understand. Put yourself in our shoes. They aren't comfortable.
Thank you and God bless you all!
As I promised above, advice from a dermatologist:
Vera Soong Hamrick wrote:
"I am old school. If you want to find a
"good dermatologist", and this is just my own opinion, ask 1. Are you
willing to do a true total body skin exam ( ENTIRE cutaneous surface
including all creases and scalp; I also examine mouth, nose (found a
curable septal melanoma once) and external genitalia and perianal area).
If not that day then schedule for one. 2. Do you actively see
inpatient consultations and are the medical staff of the local hospital?
3. Do you do volunteer work with indigent patients? 4. Do you
have a good working relationship with other physicians who also csre
for melanoma patients? (as noted on the post) That is what you are
looking for and me too."
Dr. Hamrick actually commented three times and all of her valuable comments are gathered together in one note. To read that note go here: http://www.facebook.com/note.php?note_id=222851341117590
There are wonderful, knowledgeable-about-melanoma doctors who are our first line of defense.
And I am grateful.
When I started this blog I was melanoma stage 3b Methodist pastor in the NC Conference. Now I'm advanced stage 4 and stepped down from the pulpit in Sept 2015 when mel hit my brain. Duke sent me home July 13, 2016. I almost died that Aug. Yet, I'm better than ever expected! And I'll be back in the pulpits of FOUR churches starting June 23, 2019! God is soooooo GREAT! I blog about melanoma often but I also write about my family, faith, and gratitude to God.
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I think that it is good to know the dermatologists that stay up to date with the most news about melanoma. It kinda tells you how passionate they are about the subject. It also tells you how their services are on the subject if you have it. http://www.uplandlaserdermatology.com
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