Wednesday, February 22, 2012

Melanoma With Attirude

"attirude of gratitude melanoma" is a recent search term that led Google to send some unsuspecting person to this blog. "Attirude?" Me? Really?

Actually, I love this word and I hope Websters will take all appropriate measures to officially add it to the dictionary so the world, at large, will have access to it. And, yes, I realize someone really typed a typo, and while I normally have zero-tolerance for "published" typos, I'm going to look at this one theologically, because I can, and determine God has a bigger purpose to serve through this person out there somewhere. And as a person with melanoma, I think God is using this person to help us out with our vocabulary and provide us with a much needed and accurate word. Because we can, indeed, have attirude!

Here's an actual example of what attirude looks like from a recent Facebook conversation between two mutual friends. The context of this conversation is that Poor Thing has constant troubles with her insurance company paying her claims. "Ahem Insurance" says she's not covered; employer says she is and every time she has an appointment of any kind, or scans, that litany is repeated and Poor Thing is getting frustrated. She had just experienced another round of this garbage and Good Friend comes to the rescue. As best as I can recall the actual wording went like this:

Good Friend posts on Poor Thing's wall: "I woke up this morning feeling crappy and if a friend wanted me to call an insurance company I would."

And she meant it, too. All Poor Thing had to do was say, "Sic 'em!" It would have been a "have mercy" moment for that insurance company if she had!

(For the record, Poor Thing is so far removed from being a real Poor Thing it isn't funny! She's one of the strongest young women I have the privilege of calling "friend." Just like we have our attirude moments we also have our vulnerable and highly frustrate-able moments).

In the melanoma community we understand this emotion and we've all had our episodes. They are no fun and nothing to laugh at but we may as well laugh as cry. Right? It happens. We have attirude and heaven help the person who crosses us on those days! In case you missed it, I blogged about my own most notable episode. Those of us with attirude have our own self-proclaimed Poster Child.

All we need is a secret handshake and secret password.

What we really need is understanding. Melanoma is a beyond difficult disease to live with and no matter which stage we are at diagnosis, we live with a disease that we know can reach out and bite us at any moment. And often does. It has a well-documented history. What we don't live with in body we live with in mind. It's not uncommon for attirude to rear its head as appointments approach. Or when it's time to get results. Or when it feels like it. Sometimes we know we've got attirude and sometimes it comes out of thin air and surprises us and everyone around us.

I know we all have to cope with something and we all have our stresses. Melanoma pushes those boundaries until they burst wide open and flood our souls.

Note for the benefit of anyone reading this who does not have melanoma: Never, ever compare melanoma to an everyday pain of life. OK? That displays ignorance and a level of non-compassion that's unreal to us. If the best you can do is tell us "we all have problems" then please stay quiet. That's something best left unsaid.

If you ignore that warning then be prepared for a display of attirude. You just might get it.

Better yet, try to get an idea of what we live with. Read this article Newly Diagnosed?. Read a recent blog post Come Over To The Dark Side...Of Melanoma. Search this blog site for "melanoma."

With the statistics of melanoma being what they are, if you don't have melanoma or another type of cancer yet, hang on. The day just might come when you understand attirude from a more personal vantage point.

And while that's nothing to be grateful for, I will say that you'll receive far more understanding from us than maybe you've shown.

To those of you reading this who know exactly what I'm talking about...

I am truly and humbly grateful for your presence in my life.

After this post I blogged about attirude three more times. In order they are:

http://letsgivethanks.blogspot.com/2012/02/delving-under-attirude-or-dont-mess.html

http://letsgivethanks.blogspot.com/2012/05/practical-help-dealing-with-attirude.html

http://letsgivethanks.blogspot.com/2012/06/effort-to-help-medical-community-and.html

10 comments:

  1. Another great post. I really hate that I didn't have time to read these when they were first published. You are right, attirude always shows up for me before appointments. I get crabby.

    By the way, I am glad you don't really thing I am a Poor Thing. I was concerned for a second there!

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    1. You are far from a Poor Thing but I wasn't going to use your real name. Or Christina's. Thank you. Sorry you're home sick, but am glad you're finding something constructive to do. Show that Gatorade bottle who's boss.

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  2. I do believe you are my new hero!
    What an awesome post!

    I look forward to reading more!!!

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    1. Lands, Kisma, I'm just me. If I write anything helpful God and I have a deal...He gets credit for the wheat and the chaffs all mine. If you're on Facebook, please feel free to connect with me on Melanoma Prayer Center and/or through my Rev's page (linked to on MPC). Glad to meet you!

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  3. Hello...

    I've been searching around the internet tonight. A very dear friend of mine learned last week that her husband has metastatic melanoma. They have 4 sons, 3 of whom have type 1 diabetes.

    We connected via our blogs about 3 years ago, because we both have kids with T1D...it's blossomed into a beautiful friendship...and I'm heartbroken over the news.

    Anyway, we're praying for a miracle. This Sunday we're asking people to pray and fast on behalf of Ryan.

    You can read her story here...
    http://www.ourdiabeticlife.com/2012/02/cancer.html

    I feel like I'm on this journey with her. Trying to find resources and places where she can connect once this initial phase of auto-pilot shuts off. Anyway, thank for your blog.

    God bless.

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    1. I'm sorry to hear your friend has joined our community, but please connect her with me because we have an AWESOME community! And we can help her with the auto-pilot phase also. But, also, PLEASE connect Ryan with me, too, so I can plug him in as well. He needs a very different kind of support and we'll supply that too. If they are on FB, have them go to Melanoma Prayer Center, and thanks for sharing their blog on MPC. Prayers and blessings!

      God bless you too, Wendy!

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  4. hello,

    around about this time last year i found out that my brand new husband and father to 1 and a half of my babies (was due to deliver No 2) had stage 3c melanoma.
    He is in the process of getting his first annual scans to see if it has spread after all the surgery and treatments.

    heres the thing (in all honesty) i have absolutly NO IDEA on how to help him at the moment.. his moods are so out of control im scared of opening my mouth most of the time.. just in case i get it bitten off. some days are good and he resembles who he was a year ago. but the rest of us (including the kids) are coping all the wrath. while im quite prepared to walk the line and try my best to understand it and not take it personally, the kids are being alienated and dont understand why daddy is mad at them all the time.

    i know i will never understand .. i hope in a way that i never have to, but i really need advice on what i can do/say before this *swear word* cancer eats everything that i love the most.

    thankyou for your time.

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    1. Donna, I am so sorry for how your world has been so turned upside down! Without knowing your husband I can assure you he's not happy either and he doesn't like what he sees happening to him. More than likely he hasn't learned how to control his anger and worry, and he probably hasn't given it over to God yet. He may be really ticked at God right now.

      He's got a lot going on in his mind and I understand. Boy, do I! But that doesn't mean that you and your young children need to walk on eggshells.

      My recommendation is first he needs someone in the melanoma community to talk with who understands what he's going through and is further down this road than he is. Preferably a man, but I'm always available, too. Also, you need someone to talk to as well. Preferably a woman who's the spouse of an advanced mel patient who is, also, further down this road than you are. I've been dubbed the "Chaplain Boss Queen" here at Hotel Melanoma and I'm available for both of you if you'd like. At some point, it would be great for both of you to sit at the same table, so to speak, and discuss with an advocate present, your situation...but only after you've both had time to talk with someone and process.

      Donna, feel free to find me on Facebook at the Melanoma Prayer Center and you'll find the link to my Rev Carol Taylor page there also. You and your husband...tell him too... you can each message me through MPC or my Rev's page. You can both email me at carol_c_taylor@yahoo.com if you'd rather.

      Now that you've made initial contact, let's move this conversation off here and into a more private realm if you'd like to continue it, please.

      I'm here. I'm connected to people I can plug either one or both of you into for help. However you'd like to pursue this.

      I will be away for several hours today, but, hey, I'm a pastor and I'm not by the computer 24/7! BUT, I do check everything regularly and I WILL get back to you and or your husband. PLease tell him about this and urge him to contact me. I'm here for your family!

      Blessings and prayers. It will get better!

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    2. Thankyou
      i will try to have a look on fb asap

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    3. I messaged you on FB. Since we aren't "friends" it might put it in "other" which you'll see when you click on messages. otherwise, you might not know it's there. Also, I wrote a post yesterday with your challenge in mind.

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Thank you.